Charlie Part II

In my last blog post, I introduced you to the plight of a mom and her son with epidermolysis bullosa (EB), through her powerful testimony at the Minnesota Capitol while advocating for stem cell research. Here is another except about how this disorder held her family hostage, and her never-ceasing tenacity to break free and…

Charlie Part I

I am infected. My life and my job do not have have a starting and end point. They are co-mingled; woven through every fiber of my being. I am affected by the people whom I meet: Each brave child battling a life-threatening illness; each mom trying to keep it all together; each sibling who is…